Tag Archives: Reflection

A Day In The Life…A Special Needs Breakdown

I remind myself that this too shall pass.

EVERY. SINGLE. DAY.

Missing Easter eggs–taken from fridge–still not found?

This too shall pass.

Two teardrop shaped containers of food coloring found in son’s bedroom. Two still unaccounted for. Mattress now looks like Jackson Pollock vomited there.

This too shall pass.

No clean clothes today…most of child’s pants cut up by scissors or missing. Must remember to check the heat ducts later…

This too shall pass.

Looks in fridge. *Stares blankly* Where’d the chicken go?

This too shall pass.

If you are a happy parent, please stop reading here. If you find fulfillment of life in nurturing and raising your beautiful, perfect little yous. Go away. This is not the blog you are looking for and I won’t be nice about it.

If, however, you have had dark thoughts on miserable, cold days. If you haven’t showered in forever and aren’t entirely sure whether it’s Tuesday or the apocalypse. Join me, comrade. And welcome.

*

While studying to get a degree in Russian Studies*, we were assigned the work One Day In The Life of Ivan Denisovich by Alexander Solzhenitsyn. Its simplistic, yet brutal reflection of the miseries of life for prisoners in a Russian gulag are played out in a single day for the title character Ivan Denisovich. What I did not know then, while reading about the struggles of someone trapped in a cold, cheerless existence, is that it could just as well be a metaphor for what it is like to parent a special needs child.

This too shall pass.

This has become my mantra. This reassurance every time my son finds a new and inventive way to make me regret the wonders of fertility treatments: the bad moments pass. It is a lifeline when you feel you are drowning and desperate options rear their suggestive, ugly heads.

This too shall pass.

Sometimes you find yourself sitting by the side of the road weighing bad to worse choices. Because bad are the only choices you can see.

This too shall pass.

I took my son to a birthday party Friday for the son of a longtime friend in the Autism Community. Little Man refused to enter the building. When finally forced to enter, threw a massive tantrum, beating himself and biting his arms, until he realized he wasn’t getting his way and we were going to stay. He sat rigid, refusing to join in—in a place where other children played jumping on trampolines and swinging from giant swaths of spandex dangling from the airplane-hangar-sized ceiling beams. He tolerated it until I would let him go home again.

This too shall pass.

We traveled to the delightfully grey and 40-degree weather in Traverse City, Michigan. I drove for three hours. Got fifteen minutes in the hot tub of the hotel before my son screeched his regrets and left the pool; I took him for his requested walk to the nearby lake where he promptly wanted to leave; returned to the Comfort Inn to sleep to dream of wifi only to be woken at 6:00 a.m. because someone next door took a shower. This was a good day. No major meltdowns.

This too shall pass.

Then yesterday happened.

I took my son to an event sponsored by the school celebrating a program that is intended to engage children like mine with the neurotypical kids. The ones who can play the games and take part in ordinary life. The children not like my son.**

I run into his teachers and classroom aides.

“Little Man had a really good day today.” One person tells me.

“Really, he was very happy.” Another stops to greet my son.

This too shall pass.

They don’t hear it. They don’t hear the bell ringing, the tolling, sonorous carillon signaling the shift from happy child to frantic, exhausted, terrorized hulk.

Neither do I.

This too shall pass.

We win the most patriot looking red-white-and-blue cupcakes at the cake walk—on only our sixth or seventh time around. *Thank goodness.*

I coax my son into a bizarre game where marshmallows—a food my son loves—are tossed back and forth to be caught in cups. None of the marshmallows are supposed to be eaten, however, because they keep hitting the floor. My son sneaks one anyway, confused that he couldn’t eat them in the first place. Has no one heard of cotton balls?

Cupcakes
Guess who snuck these into his room while mommy wasn’t watching?

 

This too shall pass.

I drag my reluctant child to a photo room where mustaches on sticks and leis are strewn to give families props to stage silly portraits. I manage a few with my unsmiling teen and he drags me out after thirty seconds.

This too shall pass.

He attempts to leave the building by several exits. We have only been there a half hour, but he wants out.

I ‘encourage’ my son to participate in a game in the library and he balks.

“One game. Candy Land…or Yahtzee. Then we can go.” I plead.

It is too much for him.

He is desperate and begins hitting himself violently.

Thwack. Thwack. Thwack.

It is the sound of someone testing a melon for ripeness. It is the distant sound of an axe biting into wood. It is my son’s fists cracking against his skull.

He is crying from angst or anger or frustration or stress or some combination of all of these emotions. Or none. Perhaps he is drained and all that is left is the hollow drum upon which he beats an empty tattoo.

This too shall pass.

I push him into a cozy nook for readers to sit by a pretend fire where a painted tree grows to spread its branches overhead. Or so my vague memory suggests. I was too busy dosing my child with a sedative so I could get him out of the building without scaring or hurting anyone.

This too shall pass.

As I am driving him home, I am blinded. Blinded by regrets that my son cannot take part in fun activities. That I don’t get to be the parent encouraging him to stretch his limits, but instead failing to recognize them in time to prevent catastrophe.

It is as if his emotions have spilled over from where he sits in the back seat tearing strips of paper to calm himself.*** He winds the paper around his fingers and I think, “At least he’s finally using all those summer workbooks I purchased.”

I am crying now for the pain he feels but cannot express. For the fact he can never, ever make any real friends because he has such devastating limitations.

That he is so broken and so am I.

This too shall pass.

I pull off the road because, really, I can’t see now. I can’t see the point in continuing.

I park in an empty florist’s lot. The strip of grass that divides my car from the busy traffic is a green wedge of nature slipped between asphalt boundaries and a Panera coffee shop.

I am tired. I am listening to the recording of my parenting failures skipping and repeating in my head. And before anyone thinks to tell me what I great mom I am. Stop. Just stop.

Because you don’t know the thoughts I had.

This too shall pass.

You don’t hear the insidious little fucking voices in your head telling you that there has got to be an easier way than this. That life shouldn’t be this hard. That life shouldn’t be this…

This too shall pass.

You all think there are programs to help families in need. You all think we are getting help to make it through the every-fucking-day struggle of making yourself get up when black thoughts drag you down.

Maybe there are. But you know what? I don’t qualify for them; barely anyone does. You apply through miles of red tape, applications, certifications, interviews, and, if you are lucky, you are put on a wait list to try and get one of the 450 some slots the entire fucking state has to help people with severely handicapped children who don’t qualify for Medicaid.

You heard me. 450 slots. For a state with a population approaching 10 million.

You all think that there must be someone out there helping families like mine make good choices and to step in when things get bleak or despairing. You would be dead wrong.

This too shall pass.

This is the problem with real life. Ugly thoughts are like rancid cheerleaders rooting for destruction. There are no angels to balance you out. Sometimes the monsters win.

But not today.

This too shall pass.

I watch the robins bobbing on the slender manicured lawn that is trapped on all sides by concrete barriers and the threat of chemical castration or decapitation by lawn mower for any daring weeds. The little red-breasted birds are rejoicing in the abundance of rain-forced worms.

This too shall pass.

I turn on the book on tape I’ve borrowed from the library.

The Magic Strings of Frankie Presto rolls out the welcome mat to sanity and invites me to listen. It takes some kind of talent to write a comedy set around a funeral.

Fifteen minutes later, I’m safe to go on.

If anyone knows Mitch Albom. Tell him, thanks.

This too shall pass.

In writing this, I was reminded that in college, I found One Day in the Life of Ivan Denisovich to be uplifting. Despite all of the misery, Ivan Denisovich finds moments of grace—not religious—but humanizing that help him to eek joy from the life he does have.

Ivan Denisovich got fish eyes in his soup.

I got robins bobbing for worms and the lyrical beginnings of a musician who might be a magician. Or vice versa. I’m not sure yet. The story has only begun.

I’ll have to listen for another day.

Asterisk Bedazzled Footnote:

*Because I’m all about collecting useless degrees. Ask me about my aborted career as a teacher. Go ahead, *cocks imaginary pistol* ASK.

**The normals (aka The Little Fuckers.)

***The real reason why I donated my son’s books to the school—because watching him destroy something I love and had hoped would connect us is too painful.

 

 

———————————final thoughts——————————————-

I am fine. It was just a bad moment. We all have them. Do not contact the authorities or  the Department of Human Services. I shared this to let the world know we have a problem with our resources and mental health care assistance to families in need and maybe to let other parents of special needs children know they are not alone. We just need support.

If you want to act, check out our local Autism Support of Kent County (A.S.K) agency http://www.autismsupportofkentcounty.org. They have helped my family as well as others in various outreach programs and financial aid for summer camps and therapies. Their Annual Walk for Autism is Sunday, May 7, 12:00 noon– at John Ball Zoo, 1300 Fulton W, Grand Rapids, MI 49504. If he’ll go, I’ll be the one leading my son around with a bag of marshmallows.

This Tree Is Not a Metaphor

I wish editing were as easy as gardening.

Wait…

*Does some actual yard work*

…scratch that.

I wish editing were like hiring someone to pluck unruly overgrowth from your plot.

WARNING: Mangling of Metaphors, Shameful Similes, and Tree Torture Ahead—Proceed with Caution!

*

I have, on occasion, taken a side-long look at my collected literary efforts and sighed–gusts monsoons would envy.  In those glances, I have seen the colossal effort it would take to shape them into something even vaguely resembling sense. Instead, each year I write a new, rambling incoherent piece like a prolific procrastinator of pandemic proportions. *

Do you remember my promise that I would provide the critique of my work following winning a review at last year’s writer’s conference?

*crickets chirping*

Well, you are all still waiting. Because the biggest take-away from that evaluation is that my story is starting in the wrong place. Book one of a three-books-at-least series, is mis-planted. It isn’t a weed, exactly, but it is a sprawling volunteer in my literary garden. It is like the tree in my backyard–it is a moss-encrusted mess!

Tree - 2 Weeps
Ask not for whom the tree weeps–it weeps for demolition!

It isn’t a bad tree. Yeah, sure, it has oozing cracks running down two sides, but it is lush and otherwise verdant. It’s just planted in the wrong place and threatens to split in several directions. And like my over-grown novel, it has got to go.

Tree - 3
Crude attempt at foreshadowing!

 

Faced with massive edits and rewrites, I say: “Bring on the shredder and let’s make some confetti!”

It would be so much easier to chuck my writing aspirations and plot a life without creative expectation. To slash and burn every word I’ve placed in a holding pattern, using up the data of an entire computer until I have to buy a new one to store version 15.2 of the same damn novel.  At least, that’s how it feels. It’s either that, or actually sit down and try and straighten out the mess I’ve created.**

Tree - 6
Taking a little off the top! Good thing they aren’t barbers.

 

Trees are unlike writing, as it turns out. They are actually pretty easy to dismantle. At least the guys from 1, 2, Tree made it look easy.

I watched them turn probably fifty-year’s worth of growth into so much mulch in less than three hours. I admired their editing talents greatly. ***

I did learn something from watching them. They didn’t start at the base of the trunk, trying to tackle it all in one go, but a piece at a time.

 

First a little here. Then a little there. And, before long, Cal, the stump man, was there grounding down what little remained.

There’s part of me that wants to do this. Instead of taking pruning shears to the 150,000-plus word opus, I’d chainsaw that forest of typographical nightmares and run-on story tangents and turn them into wordy wood chips!

Hacking Good Time
A metaphorical depiction of me grinding my words to digital dust.

 

But that isn’t what I want for my novel. I don’t really want to render its multi-syllabic magnificence into so much mulch. But, trim its excess maybe? To make sure it won’t crush my house in the next strong breeze to come through our neighborhood? Sure.

Reason to Worry
Because no matter how well you fill up the cracks, a story isn’t done until it’s one seamless effort!

Now all I need is a studly team of guys on standby who will cart away the bits that fall away as I work.

Dont Call Him Lambert
Don’t call him Lamont!

 

A big shout-out to Jacob, Jeremy, and Mick at 1, 2, Tree for very considerately not dropping anything on my head while I took pictures! I’m sure the temptation was overwhelming.

Asterisk Bedazzled Footnotes:

*I will also assault you with assonance.

**Looking at un-edited work without protection is like staring into the sun…while masturbating—you’ll go blind and you won’t have any fun while doing it.

***I so was NOT ogling them. I’m old enough to be their…well…aunt, at the very least. And an aunt does not ogle young men no matter how bulgy-their muscles are.

 

———————————–You Read This Far Poet-Tree Bonus—————————————-

I think that I shall never see

A poem lovely as a tree.

—From “Trees” by Joyce Kilmer

*

I think that I shall never write fiction

That isn’t pruned of coherent diction.

—From “This Tree is Not a Metaphor” by Me

 

 

 

Passé, Blasé, Just Plain Manqué!

Aging ain’t pretty and, sometimes, it gets downright ugly. You are forced to evaluate yourself for flaws and failures. Blogs are no different from people in that respect.

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Cake on Fire CLip art kid
Flaming Cake courtesy of Photobucket.com (wherein the word ‘courtesy’ means ‘stolen.’)

Facebook’s insistence that everyone in the world wish you a Happy Birthday resulted in people I haven’t spoken with in years contacting me last week when I became a quinquagenarian.*

In one exchange, an old friend asks me how I’ve been doing and I oh-so-subtly direct him to the wonders of my blog. His response?

“…Blogs are so passé…”**

*Ouch*

I don’t know about you, dear reader, but I put my heart and soul into what I write. This off-hand dismissal of my craft resulted in the following poetic interlude—performed in the key of é.

Critique Not-so Enchanté

My writing is passé,

Or so you say!

Perhaps you are no devoteé?

Or maybe you are just a protégé without caché?

I may sometimes, How do you say?, write a hit out of the park!

(Parquet?)

Sometimes it’s a swing-and-a-miss—or manqué.***

My writing may even skirt the edge of cliché!

But always, I churn the brain frappé

To scoop out a little grey cell pâté.

A luscious, literary canapé!

No hard-boiled reporter am I, producing the latest exposé!

But I do not deserve to be roasted a lá flambé!

Mayhap you will reconsider your communiqué?

But as for me, I am très désolé.

So there you have it. A damning condemnation that not only am I unoriginal, practically staring down the barrel of obsolescence, but so is my writing medium. (Not well done!)

Turning half-a-decade makes a person stop and think! Where exactly am I headed? Have I missed my chance to reinvent myself when I haven’t even invented myself yet in the first place?

Actual Birthday Cake
Nothing snarky here, just showing you my actual birthday cake baked by my mom.

 

Have I’ve officially reached a plateau that says: “Nothing new, innovative, or fresh expected. Move along!!?”

Perhaps it is fatalism of creativity? Maybe I suffer ennui? But I will steal from a kindred spirit—a voice who calls from the realm of the dead. I will lick the pen of a poet and echo  Stéphane Mallarme :

Je me mire et me vois ange! et je meurs, et j’aime —Que la vitre soit l’art, soit la mysticité— A renaître, portant mon rêve en diadème, Au ciel antérieur où fleurit la Beauté.

(Translation)

I can see my reflection like that of an angel! And I feel that I am dying, and, through the medium Of art or of mystical experience, I want to be reborn, Wearing my dream like a diadem, in some better land Where beauty flourishes.)

                                                                                                      Stéphane Mallarmé

Asterisk Bedazzled Footnote:

*L is the new XL (I’m talking Roman numerals, people, not size!)

**My immediate response? “Oh yeah? Well…your face is passé!”

***I noticed the odd appearance of accented ‘é’ words and cleverly sensed a theme. When I saw Manqué on a list of words ending in é, I had to use it. And then, there is the neato twist: where the definition for manqué conveniently defines how it feels to turn 50!

Man·qué (mäNGˈkā/) adjective:

having failed to become what one might have been; unfulfilled.

 

___________________________🎂🎂🎂🎂🎂___________________________

You’ve read this far bonus:

For those of you who missed it before, here’s the CARROT CAKE RECIPE for the cake my mom makes.

img_3613 

Alone he walks,

His cape a tattered wave of blue,

To meet the sunlight and the shadow as equals

Laughing as leaves fall, making spirals in their descent,

Through elegies of air.

 

best

So still he moves,

Leaning into a soundless void.

Planets in their orbits spin

And yet no shift in his equilibrium shows

That he is out of synch with a world

Built for words.

img_3640

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Images from a recent walk with my son, I was inspired by the drape of his blue blanket to wax poetic. Happy Halloween everybody. Nanowrimo begins tomorrow. Do not expect great things from me until December.

 

Why Don’t I Write Today?

I should write.

It is my one day off this week—a Monday filled with unfettered freedoms. At least, it will be just as soon as the window guy finishes up giving an estimate of the possibility of installing one more escape route for my child to threaten my sanity with.*

I should write.

But first I will rake some leaves. And then there is the pile of socks to sort and fold along with approximately 1 billion pair of underwear that, for some reason, are all inside out when they come out of the dryer.

I want to be a writer…but I need to return the clothes that didn’t fit and pick up the prescription at the store. Plus—as always—groceries.

I should WRITE!

Instead, I have managed to fill seven tiny plastic bags with assorted non-edible goodies for Halloween treats for my son to take to class—a class of children who really couldn’t care less if they get stickers and pencils instead of sugary products to rot their teeth. I will try to feel virtuous and not imagine the rubber duckies winding up in a landfill instead.

Procrastination

If I write, will it be of the grandiose imaginings that drift through my mind? Will I finally dig up the series this blog’s title is based upon? Will I manage to untangle the Gordian knot of plot threads that are choking the life out of the beastly thing? History suggests: NO!  I won’t.**

Maybe I will write today, but the clock is winding down. Time is a super-stellar suck of obligations, an enemy to creativity.  It whisks away the should-have’s and could-have’s and leaves me with unfolded laundry and indecision.

I ShOuLD WrITe, dAMmIT!

But will I?***

 

Asterisk Bedazzled Footnotes:

*So, how does everyone feel about egress windows? Thoughts? Opinions? Dire predictions of home invasion or child escapism?

**My friend suggested a numbered list of reasons why I don’t write. I hate the click-bait ploy of lists, so I opted for this rambling mess instead.

***Not if my Instant Gratification Monkey has anything to say about it!

 

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Featured image borrowed from freedigitalphotos.net by Sattva

 

cabbage-550-jpg

Being cheap was a virtue to my father. In honor of his anniversary of cheating the tax man, I would like to reminisce for a moment.

*

Fall is here. The farmer’s market is overflowing with knobby, thick-skinned vegetables. The pumpkins are a little lopsided and I am drawn to long, creamy-skinned butternut squash.* When I pass mounds of earthy cabbage, I am haunted by my father.

I have a distinct memory from childhood of my father, out in the front yard, kneeling in the grass and chopping cabbage with the savage ferocity of a Mongol Horde bent on conquest. Why does this memory stick, you may wonder? He would buy cabbage in bulk, you see. A head of cabbage probably cost something like 60 cents back in the day—but if you bought a bushel, you’d get ‘em for a steal.

If you buy even a half-bushel, like my father did, that’s still a lot of cabbage. That means a lot of coleslaw or–gag–sauerkraut.** Nearly every weekend, my father was outside wearing plaid shorts, a white undershirt, black socks and work boots that he left unlaced, crouched over a butcher’s block cutting board committing cruciferous homicide. He would do this for a good hour or more. He did this with sufficient repetitive monotony that it has become one long reel of boring dad-moments, with only a minor variation on a theme if the bushel contained an elusive red cabbage–which made for an extra-bloody looking pile when he got done.

We have no pictures of my father hunkered in all his glory, but it is burned forever in vivid Kodachrome on the part of my brain where random, goofy memories are stored.

So now, whenever I visit the farmer’s market to check out the goods, I linger for a moment before the veiny, green-white disembodied heads…and remember.

Asterisk Bedazzled Footnotes:

*And before you go all phallic on me, I like to chop them into cubes and broil them until they cry for mercy. Try to make a sexual innuendo outta that!

**I survived several winters’ discontent of consuming sloppy, homemade sauerkraut by vomiting dramatically whenever forced to eat it.

If this picture makes you squeamish and just a little ill--you might be a man.
If this picture makes you squeamish and just a little ill–you might be a man.

Friday Fictioneer: Who are the real vampires?

Every Friday, authors from around the world gather here to share their 100-words and offer constructive criticism and encouragement to each other. This creates a wonderful opportunity for free reading of very fresh fiction! Readers are encouraged to comment as well.  The prompt is from Janet Webb. (If you squint you can see her name in the frame of the mirror.  Cool that.)  If you care to join us, check out Rochelle Wisoff-Fields http://rochellewisofffields.wordpress.com/2014/09/10/12-september-2014/

ff

Ever since the change, I’ve avoided mirrors and windows.  Any reflective surface, really. My eyes skitter past any accidental glances.  I don’t like what I see.  When I was young, they promised miracles.  “Modern medicine will see people living well into their hundreds.” The doctors said. Then they came for me.  “It’s just one, quick procedure. This won’t hurt.” They assured me.  They lied.  And now, instead of the youthful vitality they promised, I face centuries of desiccated wandering.  Always thirsting for what was lost and never satisfied with what I find.